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The buildup causes severe neurological damage and eventually death. Emily Sanda, 6, sits with her mother, Rachel Sanda, in her grandmother Elizabeth Schultz's home in Atwater. Emily, who was born in Merced, has Niemann Pick Type C, or NP C, an extremely rare genetic disorder for which there is no cure. Emily Sanda, 6, sits Wednesday with her mother Rachel Sanda in her grandmother Elizabeth Schultz's home in Atwater,. Emily, who was born in Merced, has Niemann Pick Type C, or NP C, an extremely rare genetic disorder for which there is no cure. Emily, who was born in Merced, has Niemann Pick Type C, or NP C, an extremely rare genetic disorder for which there is no cure. Emily Sanda, 6, sits Wednesday with her mother Rachel Sanda in her grandmother Elizabeth Schultz's home in Atwater,. Emily, who was born in Merced, has Niemann Pick Type C, or NP C, an extremely rare genetic disorder for which there is no cure. Emily, who was born in Merced, has Niemann Pick Type C, or NP C, an extremely rare genetic disorder for which there is no cure. "In a lot of ways I've already mourned her loss," said Emily's mother, 28 year old Rachel Sanda. "I've accepted the fact that she will never become the daughter I imagined.

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